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Serenity Cole was one of the first patients to undergo gene therapy for sickle cell disease under a new Medicaid program in which the federal government negotiates the therapies’ cost on behalf of states — with payment depending on the treatment’s success. She says the treatment has alleviated her pain and kept her out of the hospital. (JUDD DEMALINE FOR KFF HEALTH NEWS)

Medicaid Tries New Approach With Sickle Cell

by KFF Health News January 21, 2026January 21, 2026

Pharmaceutical companies will get paid only if costly gene therapies work.